I'm really glad that you're doing better. I hope it continues to become easier for you! Best of luck and thanks for the website!

I'm really proud of you. You are just amazing :)

I'm so glad you're here!

i got UC when i gave up smoking

glad to see your doing good now man

You are an inspiration. Thank you so much for your generosity in sharing. My UC is very mild but it is good to know which foods to avoid. One food to avoid surprised me: apple. This is because, when I was most ill with UC, I read that apple soothes the gut and I lived on stewed apple for a while. It seemed to really help, as did having acupuncture. (I would recommend definitely).

Your website is good.Thanks for sharing.I have moderate UC and Apple juice has always been on my food to eat list.I can tolerate it even during Flare-ups.Rice milk is good at all times.Turmeric,Oregano,Parseley,Basil are spices good for UC.Whereas Watermelon,Oat,Pineapple juice and hard cheese causes discomfort to me.Meditation helps a lot.TC

your site was very helpful i was just told i has uc and wondered what to eat . thank you for posting the information on this site keep up the good work

Glad you are doing better and thanks so much for the information on your website. I was diagnosed with moderate UC about a year ago and I found your site to be useful. Take care.

Was just browsing around at work. Looks like your UC page has helped out LOTS of people. Great job, dude!

I was recently diagnosed and I've found your website to very helpful. Thanks so much for sharing.

I have crohns which is related to UC. I had a long expensive search in order to find what was good for me but now I feel good most of the time. It changed my life but ZI think for the better in hinsight! Glad to hear you are doing well and happy!

Hi!My daughter is 12yrs old and has UC.She is being treated at Sick Kids in Toronto.Right now they suggested Remicade and she is on Prednisone to stop this recent 'flare up'.Any suggestions?e-mail me at nadine_marsura@yahoo.ca.Cheers to you and your strength!

Yeah, I'm confused as to why the apple juice is listed as something to avoid... other than that, thank you for compiling this list, I need it!

Will, so glad you are back to living a good life with your jpouch. I've got my jpouch and happy. Do you mind if I link to your site: http://ucstory.wordpress.com

As you know i dont have need to say anything about you.You are the best.


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kevin

Find the latest news about Colon Cancer, Irritable Bowel Syndrome and Colitis. Discuss Colon related issues with members of the Colon Health Community.


<a href="http://www.coloncancer.bz">Colon Cancer News & Discussion Forum</a>

I think that you are doing a great job to make this site. This site is very easy and useful for all. I hope you made really such that things that you done.......

---------
Saurabh

Hello webmaster
I would like to share with you a link to your site
write me here preonrelt@mail.ru

Thanks for the info. My daughter was diagnosed earlier this year (2009) with severe UC. It has been a challenge. Thanks for the advice! Take care.

hi there - I've had UC for about 10 years now and currently suffering a bad flare up. I'm afraid I'll have to go back on prednisone (imuran is not working for me).

I think everyone's food intolerances will be different - eg I can't touch any red meats, anything fatty & too tough too digest. Onion & similar veggies I am basically allergic too. Very bad. Re: apple - generally it'll be the skin, it's too much fibre, that causes ppl troubles (as my nutriontist informed me).

Just wanted to say great site!
[mjpix.com]

I've found that guar gum and inulin (soluble fibers) mixed into a liquid really help me. So much that I don't have symptoms as long as I take it everyday, in the morning and at night.

Mark.
Thanks for sharing your story and for setting up a helpful forum. Sorry about all you've been through.

Excellent blog! I genuinely love how it' s easy on my eyes and also the details are well written. I am wondering how I could be notified whenever a new post has been made. I have subscribed to your rss feed which should do the trick! Have a nice day!

I keep baby wipes (Huggies) in both bathrooms. Cleanse after each BM and keep a towel handy to dry area. Helps with irritation.

I had UC for 10 years. I found out I had it at age 16. Was in hospital at least 2 times a year. I also went through all different drugs and finally got a J Pouch. Now I feel much better but I so get the "runs" once in a while. One thing my doctor said when I hade UC is that being on prednisone for 10 years or more there is a great risk of getting Colon Cancer. What will they come up with next for people with UC.

Hey everyone, I am very new to this website. I have suffered with Ulcerative Colitis for most of my Life. I have the J Pouch. Actually I believe the docter that invented The J Pouch works / worked @ The Cleveland Clinic (where I have all of my operations.) I have had 4 Major operations & still suffer with a mulitude of symptoms. Does anyone know of anything that can help push out the stool(s) so one does not have to strain & spend hours upon hours in the bathroom? ~ Thank You very much! ~ Marty in South Florida

Usually people with the jpouch have the opposite problem. That is peculiar that you have to really push to go to the bathroom. Are you on any medications at the moment?

Hi Will & everyone! ~ Not any medication for UC, only 2 other medication for other things.

Hi,again Will & everyone, Will I contacted u but didn't get any reply to my email address. Initally when I go to the bathroom I don't have any problem getting out the initial evacution. It is the rest of it that I have to push & strain with. Ya see instead of going to the bathroom 5 to 8 times a day, I try to go 2 to 3 times a day for longer periods of time. This way I am not always in there & I can try to get more things done throughout the day. Although sometimes I end up being in the bathroom for an hour and half to 3 hours @ a time when I do that. So I am pushing out what is left after the intial fall out. Any recommendations from anyone would be apprecitated!

Sorry you didn't get my response earlier. I think the email system got messed up. Hm, that is an interesting approach. I can't say I've tried doing that so I don't know. If you are spending up to 3 hours in the bathroom though, it might not be worth it just to reduce the number of times you go to the bathroom. For me I spend literally a couple minutes or less because it just all comes out though I do go 6 or 8 times a day.

Well, that is why I was asking if anyone knew if there is anything that I could take to get the rest of it out while I am in the bathroom. When I tried the approach that u do Will, I spend @least a half to an hour in the bathroom each time. So it adds up a bit.

Someone just posted on the jpouch page that they drink some coffee before bed to get everything to come out. It's an interesting idea; not sure I would recommend coffee before bed but that might work during the day. Coffee is a natural laxative though it can cause problems with the jpouch, perhaps another laxative that is short term?

I drink like one cup of coffee throughout the day. It is a medium size cup & I sip it throughout the day. ~ Thanxz for the ideas. The laxatives most probably will only help with the initial output.

Hi! I have found this site very helpful and although I have been reading the information here for some time, this is the first time I'v posted. I was wondering if anyone has any suggestions concerning protein or nutritional supplements such as Ensure or Boost for someone that is still having difficulty tolerating many meats. (Over a year out from jpouch surgery) I'd also be interested in any thoughts about daily use of Pepto. Thanks, any thoughts or suggestions are appreciated.

Has anyone posted anything here recently? B/c I am still suffering with Colitis everyday. It's the same old same old every day. I was wondering if anyone had any New suggestions or advice. ~ Thanxz

I most updates and comments are in the ulcerative colitis and jpouch pages (http://willperone.net/colitis1.php) & (http://willperone.net/colitis3.php)

i have had ultra colitis since 2007.got a bag on my side now have had 4 years dec 27th of this year.was promised to be reversed.first doctor says that i may die if he gives me the j pouch second doctor says i would have to wear a diaper the rest of my life.anyone please help what to do.they say my bottoms not healing yet they said i would be reversed.they want to make it perm.not giving me any other choice need advice please.

So you already have an ileostomy? Is any of the colon still intact or did they remove all of it? The surgery for the jpouch is pretty intense but I was able to make it through it in a pretty severe state at 85 lbs; of course at that time I was 24 so my ability to heal was higher than someone older. The whole point of the jpouch is so that you don't need to wear diapers, it recreates a pseudo large intestine from part of your small intestine so you don't have to keep running to the bathroom.

I have had 4 Operations starting in 1998. I have a J-Pouch now for about eleven years or so. I had an ileostomy for about a year. I have a multitude of digestive symptoms with the J-Pouch. It isn't the greatest. I have good days & bad days. But much of my Life revolves around this illness. I have to be aware that a bathroom is nearby. I still get cramps, spasms & other things. Some people say that special diets help them. I know that many of those diets r very strict & one has to be very disciplined with it. I really don't know if I could handle a strict special diet. I could try to just east bland foods but that won't be that fun. Eating food is to be enjoyed not to be something that one has to fear. I sometimes do use diapers. I don't like to wear them however the alternative is worse. They have these pull up very comfortable diapers that one just slips on like shorts under your underwear & clothes. People really can't tell from the outside that one is wearing them. They aren't very expensive. With Colitis & Crohns disease there r a myriad of "nice" symptoms that one has to cope with. I am always trying to think of things that will help my quality of Life better. Which is very difficult @ times with a J-Pouch & no small instestine(s). Going to the bathroom multiple times a day isn't that fun & hinders ones quality of Life. I have tried different things over the years to make the quality of my Life better. Not that many things have helped. I have thought of getting my J-Pouch Re-reversed. I am not sure if I would want to do that. When one Lives without a Major body organ / part then Life can be very trying most of the time (& it is!) & we all know that the instestines & digestive system is a Major part of the body. I hoped that my words helped some of u. If u have any more questions for me then u can ask them. - Good Luck to everyone!

I just found willperone.net by searching online, and found it is so sweet. Keep up the great work!

I have similar idea to this site.I hope we can work together
You can also get a tutor to help you. My friend told me he was helped a lot by top <a href=http://maps.google.com.sg/maps/place?hl=en&georestrict=input_srcid:7818fde7679d4a5e>chinese home tutor </a>. Can you also share me with your comments in here?

I got my colostomy at 16 yrs old I am now 34. Had two kids with a reconstructuon, J pouch. Had two high risk pregnancies sepnt most time in the hospital. Still get pouchitis may now have Chrons looking for friends to talk to heather.wilbur@yahoo.com

Has anyone tired the B.R.A.T. diet? It's a bland diet.

my UC is gotten so bad that I was not able to
tolerate any foods other than vegetables and
boil fish. any other foods would cause fatigue
brain fog and fever. my biggest worry on this
diet was lack of antioxidants that is abundant is
fruits which I could not consume due to
inflammation and diarrhea response I would get
from their high sugar content. I was able to
solve this problem by taking juice plus
supplement with provide 17 variety of fruits and
vegetables in a couple of capsules. all sugar
sodium water and most of the fibers are taken
out and what is left is all the antioxidant and
phytonutrition you get from 7 daily servings of
fruits and vegetables. I discovered this product
online at www.nutritiontogojuiceplus.com